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Parents of Children with Disabilities Information Center

Organizations

1. AAC Intervention
   Maintained by two certified speech language pathologists, this web site covers AAC products and presentations on AAC intervention. The purpose of their work is to encourage functional communication within an activity-based framework. [More Information on AAC Intervention]
   
   
2. ABA Materials
   ABA produces and sells educational materials to help children (with or without disabilities) develop and expand their speech and language skills. [More Information on ABA Materials]
   
   
3. ACE Centre
   The ACE Centre (Aiding Communication in Education) offers help and support to children with complex physical and communication difficulties and their parents, caregivers, and therapists. Working with parents, the child, and the child's school, it identifies communication aids and other technologies and methods that can enable the child to communicate and read. In addition to assessment and training services, it also develops software and participates in research projects. [More Information on ACE Centre]
   
   
4. Active Living Alliance
   This site is a database of information regarding ways to have a healthy and active life with a Disability. [More Information on Active Living Alliance]
   
   
5. Adaptive Parenting Equipment
   This publication is presented as a catalyst for problem-solving regarding the development of adaptive parenting equipment. The photographs of parents with disabilities and their babies are intended both to clarify the use of the products and to convey their role in an appropriately compelling way. [More Information on Adaptive Parenting Equipment]
   
   
6. Administration on Developmental Disabilities
   As part of the Administration for Children and Families of the US Department of Health and Human Services, the Administration on Developmental Disabilities (ADD) is responsible for execution of the Developmental Disabilities Assistance and Bill of Rights Act of 2000. This Act emphasizes employment, education, childcare, health, housing, transportation, recreation and quality assurance. ADD ensures that people with developmental disabilities and their families receive the services and supports they need and participate in the planning and designing of those services. [More Information on Administration on Developmental Disabilities]
   
   
7. All Our Children
   All Our Children provides information and resources to empower parents of children with special needs in order to help special needs children reach his or her full potential. Funded by a U.S. Department of Education grant, the center serves the Northeast Washington (state) area and is staffed by parent mentors trained in conflict resolution and information technology, who have children with special needs. It is equipped with computers, video equipment, a short-stay childcare area and a lending library. The center offers parent education, referrals to professionals and organizations, assistance in accessing and qualifying for services, outreach, story theatre and mediation. [More Information on All Our Children]
   
   
8. American Deafness and Rehabilitation Association
   ADARA's mission is to facilitate excellence in human service delivery with individuals who are Deaf or Hard of Hearing. Membership includes rehabilitation personnel, program administrators and coordinators, mental health workers, educators, social workers, interpreters, students, hearing aid personnel, secretaries, lawyers, audiologists, speech therapists, physicians, psychologists, medical personnel, organizations and other specialists in the field. ADARA is also of interest to many parents and other people who work with people who are deaf or hard of hearing. [More Information on American Deafness and Rehabilitation Association]
   
   
9. American Society for Deaf Children
   ASDC was founded in 1967 as a parent-helping-parent organization. Today, ASDC is an national, independent non-profit organization whose purpose is providing support, encouragement, and information to families raising children who are deaf or hard of hearing. [More Information on American Society for Deaf Children]
   
   
10. AsthmaMoms
    AsthmaMoms pulls together information in an easy-to-read format for the public in both English and Spanish. AsthmaMoms is an interactive online asthma community resource. AsthmaMoms includes information from "Managing Asthma in School" (see National Institutes of Health on-line video) to "Controlling Asthma Triggers in Your Home" (see American Lung Association and Environmental Protection Agency video) to asthma statistics in your area (see map section under resources). In addition, AsthmaMoms contains a Calendar of Events, a discussion section, links to maps of pollen (tree, weed, mold and grass) and air quality, organizations, health services, asthma camps, sports information, product evaluations and recalls, and asthma medications. [More Information on AsthmaMoms]
    
    
11. Autism Treatment Center of America
    The Center offers the Son-Rise Program that teaches parents, their volunteers and assisting professionals how to design and implement parent-directed, child-centered, home-based programs for their children with autism Autism Spectrum Disorders, Pervasive Developmental Disorder (PDD), Asperger's and all other developmental difficulties. [More Information on Autism Treatment Center of America]
    
    
12. AutismLink
    AutismLink offers information and help to parents of autistic children in western Pennsylvania. They have no affiliations with managed care organizations, wraparound providers, or local hospitals or physicians. [More Information on AutismLink]
    
    
13. Blind Children's Fund
    The Blind Children's Fund is a non-profit organization providing information, materials, equipment, and resources for parents and professionals working with children who are blind. [More Information on Blind Children's Fund]
    
    
14. Boys Town National Research Hospital
    Boys Town National Research Hospital provides treatment services for children with hearing loss and other communication disabilities. The hospital also conducts research on prevention and treatment of these disabilities. [More Information on Boys Town National Research Hospital]
    
    
15. Broward Gold Coast Down Syndrome Organization
    "Our organization is well aware of the special needs of your child and we are available to help you help your child." They hold informational meetings and workshops that discuss various aspects of Down Syndrome. [More Information on Broward Gold Coast Down Syndrome Organization]
    
    
16. Camp Summit
    "Camp Summit provides a residential, barrier-free camping experience for persons with special needs. Recreational and educational programming includes swimming, horseback riding, performing arts, a rope challenge course, wilderness and nature study, arts and crafts, fishing, games, camping and group activities. All activities are adapted to the individual camper's ability." Though most campers come from the the Dallas/Fort Worth, Texas area, the camp attracts children from the entire U.S. [More Information on Camp Summit]
    
    
17. Caring Communities
    Caring Communities, Inc. trains teens and adults to become respite care givers for children with disabilities and connects them to families though our respite care registry called the Caring Network. They assist families who raise children with developmental delays, disabilities and/or special health care needs. [More Information on Caring Communities]
    
    
18. Chicago Hearing Society
    "To empower deaf, hard of hearing and hearing people to communicate with each other, thereby lessening the isolation which separates them." The Chicago Hearing Society provides information on a variety of events and services for people with hearing impairments in the Chicago area. [More Information on Chicago Hearing Society]
    
    
19. Children's Hemiplegia and Stroke Association
    CHASA is a non-profit 501(c) corporation that offers support and information for families of children who have hemiplegia, hemiparesis, or childhood, infant, or in utero stroke. This site contains research; rehabilitation support; advice for parents, teen and kids and education and products pertaining to child hemilegia and stroke. [More Information on Children's Hemiplegia and Stroke Association]
    
    
20. Children's Institute for Learning Differences
    "CHILD is a 501(c)(3), non-profit organization. Children's Institute operates two schools, CHILD School and New Heights School, which serve children ages 3-14 from throughout the greater Puget Sound area. In addition to our school programs we also offer sensory-based occupational therapy, training for teachers and parents of special needs children, and individual and family counseling for families dealing with the challenges of raising a special needs child." [More Information on Children's Institute for Learning Differences]
    
    
21. Cleveland Clinic Children's Hospital for Rehabilitation
    "The Children's Hospital for Rehabilitation is one of only a handful of accredited, freestanding pediatric rehabilitation hospitals in the country. We serve infants and children through age 18 with complex chronic illnesses and disabilities." The hospital provides physical therapy and rehabilitation services, and it has a Center for Autism. [More Information on Cleveland Clinic Children's Hospital for Rehabilitation]
    
    
22. Closing the Gap
    Closing The Gap, Inc. is an organization that focuses on computer technology for people with special needs through its bi-monthly newspaper, annual international conference and extensive web site. They also publish the Closing the Gap Resource Directory, an extensive product guide developed to assist parents and professionals in the selection of computer-related products and services for children and adults with special needs. [More Information on Closing the Gap]
    
    
23. Developmental Delay Resources
    "A nonprofit organization dedicated to meeting the needs of those working with children who have developmental delays in sensory motor, language, social, and emotional areas. DDR publicizes research into determining identifiable factors that would put a child at risk and maintains a registry, tracking possible trends. DDR also provides a network for parents and professionals and current information after the diagnosis to support children with special needs." [More Information on Developmental Delay Resources]
    
    
24. DigMyWalker.com
    Maintained by Sarah Reha, a gerontologist, this site is a forum and Blog about improving the asthetic appeal of currently available mobility products and paving the way for new and more attractive assistive devices. [More Information on DigMyWalker.com]
    
    
25. Down Syndrome Association of Central Ohio
    "Since 1972, the Down Syndrome Association of Central Ohio (DSACO) USA has maintained a network of individuals with Down syndrome, parents, professionals and health care providers working together to ensure our mission that all individuals with Down syndrome are given the opportunity to achieve their potential. We believe that families of individuals with Down syndrome have the responsibility to educate themselves about Down syndrome and the right to easy access to the necessary information." [More Information on Down Syndrome Association of Central Ohio]
    
    
26. DREAMMS for Kids, Inc.
    DREAMMS for Kids, Inc. is an assistive technology information clearinghouse located in the Fingerlakes of New York. Founded by the parents of a child with Down syndrome, DREAMMS is committed to increasing the use of computers, high quality instructional technology, and assistive technologies for students with special needs in schools, homes and the workplace. As a 501(c)(3) agency, they are supported by personal and corporate donations and the small revenue from our product sales. [More Information on DREAMMS for Kids, Inc.]
    
    
27. Dyslexia My Life
    An informative site on dyslexia that grew out of the popularity of the book "Dyslexia My Life" by Girard Sagmiller. This site offers resources and articles on how to manage dyslexia effectively. It might be of particular interest to parents of children who have just recently been diagnosed with this learning disability. [More Information on Dyslexia My Life]
    
    
28. Education, U.S. Department of
    The main site for the U.S. Department of Education offers information about Federal education programs and services, as well as publications, links, and other information about education in the United States. Programs admininstered by the Education Dept. include the American Printing House for the Blind, Centers for Independent Living, Disability and Business Technical Assistance Centers, the Early Intervention Program for Infants and Toddlers with Disabilities, the Helen Keller Center, Independent Living Services for Older Individuals Who Are Blind, the National Institute on Disability and Rehabilitation Research (NIDRR), the National Technical Institute for the Deaf, Protection and Advocacy for Assistive Technology, the Randolph Sheppard Vending Facility Program, Rehabilitation Engineering Research Centers, Rehabilitation Research and Training Centers, State Grants for Assistive Technology, and other programs serving people with disabilities. [More Information on Education, U.S. Department of ]
    
    
29. Educational Equity Concepts
    EEC is a national not-for-profit organization that promotes bias-free learning through innovative programs and materials. Founded in 1982, its mission is to decrease discrimination based on gender, race/ethnicity, disability, and level of family income. [More Information on Educational Equity Concepts]
    
    
30. Exceptional Parent
    A monthly periodical on parenting a child or young adult with a disability or special healthcare needs. [More Information on Exceptional Parent]
    
    
31. Exceptional Parent Library
    This site sells a variety of books, videos and CDs on parenting children with disabilities or special health needs. [More Information on Exceptional Parent Library]
    
    
32. Facing Disability for Families Facing Spinal Cord Injuries
    FacingDisability.com is designed to provide information and support for people with spinal cord injuries (SCI) and the members of their families. Facing Disability has more than 1,000 videos drawn from interviews of people with spinal cord injuries, their families, caregivers and experts. [More Information on Facing Disability for Families Facing Spinal Cord Injuries]
    
    
33. Federation for Children with Special Needs
    "The Mission of the Federation for Children with Special Needs is to provide information, support, and assistance to parents of children with disabilities, their professional partners, and their communities. We are committed to listening to and learning from families, and encouraging full participation in community life by all people, especially those with disabilities." [More Information on Federation for Children with Special Needs]
    
    
34. Federation of Families for Children's Mental Health
    This national family-run organization is dedicated exclusively to helping children with mental health needs and their families achieve a better quality of life. The Federation provides leadership to develop and sustain a nationwide network of family-run organizations and helps policy-makers, agencies, and providers become more effective in delivering services and supports that foster healthy emotional development for all children. [More Information on Federation of Families for Children's Mental Health]
    
    
35. Future Reflections
    Future Reflections is a magazine for parents and teachers of blind children. It is published quarterly by the National Organization of Parents of Blind Children, a Division of the National Federation of the Blind (NFB). Future Reflections is available in print, on cassette tape, or via email, and a special introductory book issue is available free from the NFB. Content from current and past issues can be accessed using the Web. [More Information on Future Reflections]
    
    
36. Great and Simple Gifts
    [More Information on Great and Simple Gifts]
    
    
37. Hanen Centre
    "A recognized innovator in family-focused early language intervention programs and learning resources for parents and professionals around the world." [More Information on Hanen Centre]
    
    
38. HiP Magazine
    Formerly a regularly published magazine, the site now offers information benefitting deaf and hard of hearing children and their family members. [More Information on HiP Magazine]
    
    
39. KidNeeds.com
    KidNeeds.com provides a place where children with special needs, their families and others can go for information about various disabilities, public health policy and advocacy efforts as well as links to state and national programs and services. [More Information on KidNeeds.com]
    
    
40. Kids Together, Inc.
    "This site is designed to provide helpful information and resources to enhance the quality of life for children and adults with disabilities, and communities as a whole." [More Information on Kids Together, Inc.]
    
    
41. Lash and Associates Publishing/Training
    The Lash and Associates site has information and publications on the consequences of brain injury in children, adolescents and young adults. The site includes various books, pamphlets, and other manuals available for order and/or subscription. Also provided are forums, newsletters, kids pages, and other useful tools to aid in the understanding of those with brain injuries. [More Information on Lash and Associates Publishing/Training]
    
    
42. Lutheran Services in America - Disability Network
    Lutheran Services in America - Disability Network is a nationwide association of Lutheran social ministry organizations serving the needs of people with mental retardation and developmental disabilities. The Network's 13 members provide rehabilitation services, work programs, residential services, and respite care. [More Information on Lutheran Services in America - Disability Network ]
    
    
43. Mothers from Hell 2
    MFH2 is a grass-roots parent advocacy group, fighting for the appropriate education, community acceptance, needed services, rights of, and entitlements for individuals with disabilities. It offers support and empowerment for families of individuals with special needs. [More Information on Mothers from Hell 2]
    
    
44. Muscular Dystrophy Family Foundation
    The Muscular Dystrophy Family Foundation is a national organization that provides adaptive equipment, clinic services, advocacy, and resources to children, adults, and family members effected by more than 40 neuromuscular diseases. Staff members are available 24 hours per day, seven days per week, 365 days a year. [More Information on Muscular Dystrophy Family Foundation]
    
    
45. National Association for Parents of Children with Visual Impairments
    The National Association for Parents of Children with Visual Impairments (NAPVI) is a national organization that enables parents to find information and resources for their children who are blind or visually impaired, including those with additional disabilities. It offers a national 800 line for information and referral services. [More Information on National Association for Parents of Children with Visual Impairments]
    
    
46. National Association for Parents of the Visually Impaired
    NAPVI "is a non-profit organization of, by and for parents committed to provide support to the parents of children who have visual impairments." NAPVI has affiliate organizations in many states. [More Information on National Association for Parents of the Visually Impaired]
    
    
47. National Association for the Dually Diagnosed
    NADD is a not-for-profit membership association established for professionals, care providers and families to promote understanding of and services for individuals who have developmental disabilities and mental health needs. [More Information on National Association for the Dually Diagnosed]
    
    
48. National Center for Learning Disabilities
    Since 1977 NCLD has reached out to individuals with LD, their families, educators, researchers, and others committed to increasing public awareness of and opportunities for people with LD. NCLD's programs center on public awareness, information dissemination, research-to-practice, and public policy. [More Information on National Center for Learning Disabilities]
    
    
49. National Center for Technology Innovation
    Funded by the U.S. Office of Special Education Programs (OSEP), NCTI advances learning opportunities for individuals with disabilities by fostering technology innovation. We seek to broaden and enrich the field by providing resources and promoting partnerships for the development of tools and applications by developers, manufacturers, producers, publishers and researchers. [More Information on National Center for Technology Innovation]
    
    
50. National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention
    NCBDDD promotes the health of babies, children, and adults, and enhances the potential for full, productive living. Its work includes identifying the causes of birth defects and developmental disabilities, helping children to develop and reach their full potential, and promoting health and well-being among people of all ages with disabilities. [More Information on National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention]
    
    
51. National Center on Secondary Education and Transition
    The National Center on Secondary Education and Transition (NCSET) coordinates national resources, offers technical assistance, and disseminates information related to secondary education and transition (to work or postsecondary education) for youth with disabilities in order to create opportunities for youth to achieve successful futures. [More Information on National Center on Secondary Education and Transition]
    
    
52. National Dissemination Center for Children with Disabilities
    The Center provides information on: disabilities in children and youth; programs and services for infants, children, and youth with disabilities; IDEA, the nation's special education law; No Child Left Behind, the nation's general education law; and research-based information on effective practices for children with disabilities. The Center was formerly known as the National Information Center for Children and Youth with Disabilities (NICHCY). [More Information on National Dissemination Center for Children with Disabilities]
    
    
53. National Family Association for Deaf-Blind
    NFADB "is a non-profit, volunteer-based family association. Our philosophy is that individuals who are deaf-blind are valued members of society and are entitled to the same opportunities and choices as other members of the community." [More Information on National Family Association for Deaf-Blind]
    
    
54. National Family Caregivers Association
    NFCA is a grass roots organization created to educate, support, empower and speak up for the millions of Americans who care for chronically ill, aged or disabled loved ones. The site offers many resources for caregivers including town hall meetings, publications, conferences, and online forum. [More Information on National Family Caregivers Association]
    
    
55. National Information Center for Children and Youth
    NICHCY is a national information and referral center that provides information on disabilities and disability-related issues for families, educators, and other professionals. Its special focus is children and youth (birth to age 22). The site includes information about specific disabilities, child education services, parenting materials, various disability related associations and organizations, education rights, among many other useful services. [More Information on National Information Center for Children and Youth]
    
    
56. National Lekotek Center
    The National Lekotek Center encourages the expansion of knowledge about the link between "play and early learning for children with special needs (those with disabilities or at risk of developmental delays)." Lekotek, or "play library," centers, offer family play sessions, toy lending libraries, Compuplay family computer centers, as well as many other fun opportunities that stimulate the growth and development of children with disabilities. There are Lekotek centers in several states across the U.S. [More Information on National Lekotek Center]
    
    
57. Office of Special Education Programs, U.S. Department of Education
    OSEP is dedicated to improving results for infants, toddlers, children and youth with disabilities ages birth through 21 by providing leadership and financial support to assist states and local districts. The Individuals with Disabilities Education Act (IDEA) authorizes formula grants to states, and discretionary grants to institutions of higher education and other non-profit organizations to support research, demonstrations, technical assistance and dissemination, technology and personnel development and parent-training and information centers. OSEP is a component of OSERS in the Dept. of Education. [More Information on Office of Special Education Programs, U.S. Department of Education]
    
    
58. PACER Center
    The PACER (Parent Advocacy Coalition for Educational Rights) Center was created by parents of children and youth with disabilities to help other parents and families facing similar challenges. PACER's programs address special needs for all stages of childhood and all disabilities. Their free Catalog of Publications offers educational materials to parents and social service professionals on issues related to special education and disabilities. [More Information on PACER Center]
    
    
59. Parent Project Muscular Dystrophy
    Parent Project Muscular Dystrophy’s mission is to improve the treatment, quality of life and long-term outlook for all individuals affected by Duchenne muscular dystrophy (DMD) through research, advocacy, education and compassion. [More Information on Parent Project Muscular Dystrophy]
    
    
60. Parents Helping Parents, Inc. (PHP)
    PHP is a non-profit organization for parents of children with disabilities. The site offers information on special education, health, assistive technology, support groups, and other useful information for parents. [More Information on Parents Helping Parents, Inc. (PHP)]
    
    
61. Pathways Awareness Foundation
    The Pathways Awareness Foundation is a national, non-profit organization dedicated to raising awareness about the benefit of early detection and early therapy of movement differences in children. Pathways assists both pediatricians and families who have concerns about their children’s physical development. Our activities are based upon the expertise of the Pathways Medical Round Table, comprised of leading physicians, clinicians, nurse practitioners and lay advisors. Pathways believes that through early detection, intervention, inclusion and increased public awareness, children with movement differences can look forward to a brighter future. [More Information on Pathways Awareness Foundation]
    
    
62. Portal Site for Special Needs Education
    This site is managed by the Telecommunications Advancement Organization of Japan (a Japanese semi-governmental organization authorized by the Ministry of Public Management, Home Affairs, Posts and Telecommunications) On this site, information is offered from various kinds of fields such as education, welfare, labor, sanitation and medical service not only in Japan but foreign countries. It supports whoever needs any news and knowledge of special needs education. [More Information on Portal Site for Special Needs Education]
    
    
63. Reaching for the Stars
    Reaching For The Stars was started by Anna Marie Champion and Cynthia Frisina Gray, two mothers determined to go above and beyond what is currently possible to make a profound difference in the lives of our children and others, who suffer the negative physical, emotional and social impact of cerebral palsy. They saw the need that exists for more progressive research on the causes and possible cures and treatments for children with CP. RFTS's mission is to foster national cerebral palsy research with the goal of expediting the creation of new medicines and effective treatments for children with CP. RFTS also focuses on (1) building community awareness, education and patient advocacy, on a nation-wide basis, among care givers and health care providers regarding new and promising research, treatments and therapies; and (2) developing and promoting new discoveries and clinical research programs that will advance the pharmacological, surgical and therapeutic treatment of CP. [More Information on Reaching for the Stars]
    
    
64. Rehabilitation Research and Training Center for Children's Mental Health
    The Research and Training Center for Developing and Implementing Integrated Systems of Care for Child and Adolescent Mental Health is an integrated set of research projects designed, in the short run, to enhance knowledge about effective implementation of systems of care, and, in the long run to make it possible for children with serious emotional disturbances to live, learn, work, and thrive in their own communities. The Center has developed a theory of factors that contribute to effective implementation; within that theory is a strong emphasis on the importance of understanding from a systemic perspective the interrelationship between the different factors, and their relationship to the community culture and context in which a service delivery system exists. The Center has a set of six interconnected research projects that use both quantitative and qualitative methods, and are holistic in their focus, to further test and develop its theory. [More Information on Rehabilitation Research and Training Center for Children's Mental Health]
    
    
65. Rehabilitation Research and Training Center on Policies Affecting Families of Children with Disabilities
    This center conducts research on the effects of the policies of governments, systems, networks, and agencies on the family quality of life and community integration (FQOL/FCI) of families who have children with developmental disabilities and emotional-behavioral disabilities or both. Researchers identify four target populations: families, providers, policy-leaders, and networks (all at the federal, state, and local levels). [More Information on Rehabilitation Research and Training Center on Policies Affecting Families of Children with Disabilities]
    
    
66. Rehabilitation Research and Training Center to Improve Services for Children with Serious Emotional and Behavioral Disabilities and Their Families
    This project conducts an integrated set of research, training, and technical assistance activities to study and promote effective, community-based, culturally competent, family-centered, individualized and strength-based services for children and youth with emotional or behavioral disorders and their families. Research issues include caregivers and employment, inclusive child care, early intervention, education and service planning, service delivery, training and mentoring. [More Information on Rehabilitation Research and Training Center to Improve Services for Children with Serious Emotional and Behavioral Disabilities and Their Families]
    
    
67. Research and Training Center on Family Support and Children's Mental Health
    This project conducts research, training, and technical assistance activities to study and promote effective, community-based, culturally competent, family-centered, individualized and strength-based services for children and youth with emotional or behavioral disorders and their families. [More Information on Research and Training Center on Family Support and Children's Mental Health]
    
    
68. Ricability
    Ricability is a British national research charity dedicated to providing independent information of value to disabled and older consumers. Ricability researches and publishes consumer reports. The reports are based on rigorous research and provide practical information needed by disabled and older consumers. Ricability staff also work with manufacturers, service providers, regulators and policy makers to improve products and services. [More Information on Ricability]
    
    
69. Specialized Training of Military Parents
    "STOMP is a federally funded Parent Training and Information (PTI) Center established to assist military families who have children with special education or health needs." STOMP is a national project that provides services to military personnel worldwide. [More Information on Specialized Training of Military Parents]
    
    
70. Spectrum Keys
    Spectrum Keys is a subscription website that offers research-based resources relating to children with autism spectrum conditions and other developmental disabilities. Members receive free access to almost 2,000 images arranged into picture packs, videos depicting exemplary behaviors, and success stories. Members also receive discounts on books and high-definition videos. [More Information on Spectrum Keys]
    
    
71. Spectrum Training Systems Inc.
    Spectrum Training Systems, Inc. educates parents, teachers, therapists and individuals who work directly with anyone affected by Autism Spectrum Disorder (ASD). Spectrum offers its services primarily in the Midwestern United States. [More Information on Spectrum Training Systems Inc.]
    
    
72. Spina Bifida Association of America
    SBAA promotes prevention of spina bifida and works to enhance the lives of all affected this condition. The Association was founded in 1973 to address the specific needs of the spina bifida community and serves as the national representative of almost 60 chapters. SBAA provides services such as a toll free information and referral service; a bi-monthly newsletter; publications; and a scholarship fund. [More Information on Spina Bifida Association of America]
    
    
73. TechMatrix
    The TechMatrix is a dynamic, searchable database that provides information on resources for students with special needs. Funded by the U.S. Department of Education's Office of Special Education Programs and developed by the National Center for Technology Innovation (NCTI) and the Center for Implementing Technology in Education (CITEd), the database enables educators and parents to make technology choices based on reviews and research. It offers 7 sets of criteria aid a person to focus their search technology tools and other resources: (1) by content areas; (2) by grade level; (3) by the user’s role (e.g., parent, teacher, administrator); (3) by IDEA disability category; (4) by 8 different learning supports, such as access to multiple formats of text or alternate access to the computer; (5) by accessibility features; (6) by adherence to national education standards; and by technical specifications. Search results include lists of relevant products, Web resources, research publications and Infobriefs from NCTI. For each product listed, the TechMatrix provides a complete product profile page, including a full descripion plus additional information such as cost range, operating platform, and link to Learning Supports that apply to the product. There is also a product comparison feature. The TechMatrix matches research and learning supports, with citations and abstracts from research conducted on the efficacy of technology in learning for students with and without disabilities. The TechMatrix site provides the ability to bookmark searches and share information via email. [More Information on TechMatrix]
    
    
74. Through the Looking Glass
    Through the Looking Glass (TLG) is a nationally recognized center that has pioneered research, training, and services for families in which a child, parent or grandparent has a disability or medical issue. TLG is a disability community based nonprofit organization, which emerged from the independent living movement, and was founded in 1982 in Berkeley, California. [More Information on Through the Looking Glass]
    
    
75. United Cerebral Palsy
    UCP and its nationwide network of affiliates strive to ensure the inclusion of persons with disabilities in every facet of society—from the Web to the workplace, from the classroom to the community. Its mission is to advance the independence, productivity and full citizenship of people with disabilities through an affiliate network. UCP affiliates serve more than 30,000 children and adults with disabilities and their families every day. The affiliates provide services such as housing, therapy, assistive technology training, early intervention programs, individual and family support, social and recreation programs, community living, state and local referrals, employment assistance and advocacy. Each affiliate offers a range of services tailored to its community's needs. [More Information on United Cerebral Palsy]
    
    
76. V.I. Guide
    A guide to Internet resources on blindness and visual impairment for parents and teachers. The site has a wide variety of links and other information relating to services and products for people who are blind. [More Information on V.I. Guide]
    
    
77. Woodbine House
    This publishing company focuses primarily on disability and other related topics. There are 63 books available from The Special Needs Collection. [More Information on Woodbine House]
    
    
78. Yahoo Augmentative/Alternative Communication Group
    The Yahoo Augmentative/Alternative Communication Group is a place where speech-language pathologists, occupational therapists, physical therapists, parents, and teachers can share ideas or post questions relating to augmentative and alternative communication (AAC). Topics include assessment, equipment options, engineering the home or classroom environment, activity ideas, etc. [More Information on Yahoo Augmentative/Alternative Communication Group]
    
    

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Conferences                                                         Return to top of page

Past Conferences                                                         Return to top of page

1. Atypical Learner Conference
   April 13, 2012 to April 15, 2012 in Annapolis, Maryland, United States
   The second annual Atypical Learner Conference for children with X & Y chromosome variations, dyslexia and dyspraxia will feature keynote speaker, Nancy Clements of The Stern Center for Language and Learning, who will cover the theoretical model of Michelle Garcia's Social Thinking program and strategies to interact with others. Other sessions include brain behavior, "Developing an IEP without litigation", "Is it all about the X?", "Neuroscience: Function of girls with XXX and boys with XXY", and parent panels. This conference is sponsored by The Focus Foundation. [More Information on Atypical Learner Conference ]
   
   
2. 2012 Accessibility Summit
   April 20, 2012 to April 21, 2012 in Vienna, Virginia, United States
   The 2012 Accessibility Summit will offer 30 workshops covering a broad range of disability-related topics. Families, caregivers, religious organizations, teachers, and other professionals will be able to attend innovative and educational presentations on issues relevant to people with disabilities and those who care for, and work with, people with disabilities. Attendees also will be able to interact with over 60 vendors representing products, services, and organizations of interest to the special needs community. [More Information on 2012 Accessibility Summit]
   
   
3. Closing the Gap: 27th Annual Conference
   October 15, 2009 to October 17, 2009 in Bloomington, Minnesota, United States
   The 27th Closing the Gap Annual Conference will cover a broad spectrum of topics on technology as it is being applied to all disabilities and age groups in education, rehabilitation, vocation, and independent living. This year's conference builds on a tradition of providing a comprehensive examination of the most current uses of technology by persons with disabilities and the professionals who work with them. People with disabilities, special educators, rehabilitation professionals, administrators, service care providers, personnel managers, government officials, and hardware/software developers will share their experiences and insights. All day pre-conference workshops are scheduled for October 13-14, 2009. [More Information on Closing the Gap: 27th Annual Conference]
   
   
4. Resources for Children with Special Needs, Inc. Special Camp Fair 2008
   January 26, 2008 in New York , New York, United States
   The Special Camp Fair brings together representatives of day camps in New York City and sleep away camps all over the Northeast that serve children with disabilities. This is an opportunity to for parents, caregivers and children in the New York City area to talk to camp representatives about their needs and how the camps can serve those needs. Admission to the Fair is free, and adult attendees (one per family) will get a free copy of "Camps 2008." [More Information on Resources for Children with Special Needs, Inc. Special Camp Fair 2008]
   
   
5. 2007 International Network of Autism Training and Technical Assistance Programs Conference
   September 26, 2007 to September 28, 2007 in Columbus, Ohio, United States
   The Network of Autism Training and Technical Assistance Programs (NATTAP), and the Autism Society of America (ASA) present the First Annual International NATTAP Conference hosted by the Ohio Center for Autism and Low Incidence in Columbus, Ohio. The conference will gather parents and professionals from across all 50 states and over 15 countries. The objectives of the conference are to review current models of systems, best practice in research and intervention, and methods of capacity building – all of which contribute to the ultimate goal of improving outcomes for individuals ages 3-21. A forum will be provided in which ideas will be exchanged that will set a new foundation in autism spectrum disorders (ASD). [More Information on 2007 International Network of Autism Training and Technical Assistance Programs Conference]
   
   
6. 2007 CAL-ED/IMPACT Conference
   April 20, 2007 to April 22, 2007 in Burbank, California, United States
   The CAL-ED/IMPACT Conference will provide learning opportunities and networking forums for educators and parents of deaf or hard of hearing children from around California. The conference also targets school administrators, deaf and hard of hearing adults, psychologists, teacher training program staff, interpreters, audiologists, speech therapists and other support personnel. [More Information on 2007 CAL-ED/IMPACT Conference]
   
   
7. 2006 United Cerebral Palsy Annual Conference
   April 27, 2006 to April 29, 2006 in Little Rock, Arkansas, United States
   The theme of the 2006 conference, "Creating Change", will guide the plenary and breakout sessions, which will provide guidance to UCP affiliates to help them improve their management practices and overall effectiveness. [More Information on 2006 United Cerebral Palsy Annual Conference]
   
   
8. 2007 Special Camp Fair: Summer Options for Children and Teens with Special Needs
   January 27, 2007 in New York, New York, United States
   From 11:00 a.m.-3:00 p.m. representatives from 70 New York City day camps and sleepaway camps in the Northeast will be on hand to help parents and professionals plan productive summer experiences for children with disabilities. The Fair will also feature information on travel programs, remedial education programs, volunteer and job opportunities and early childhood programs. Spanish and sign language interpreters will be available. Visitors to the Fair will receive a free copy of the Camps 2007 Guide. [More Information on 2007 Special Camp Fair: Summer Options for Children and Teens with Special Needs]
   
   
9. Osteogenesis Imperfecta Foundation 2006 National Conference
   July 20, 2006 to July 22, 2006 in Omaha, Nebraska, United States
   The Osteogenesis Imperfecta (OI) Foundation will host its biannual National Conference at the Omaha (NE) Hilton and the Qwest Convention Center. The meeting brings together families with children affected by OI and professionals to discuss the daily living and medical issues faced by people with this rare disorder. [More Information on Osteogenesis Imperfecta Foundation 2006 National Conference]
   
   
10. ATIA 2006 Conference
    January 18, 2006 to January 21, 2006 in Orlando, Florida, United States
    ATIA 2006 is the annual conference of the Assistive Technology Industry Association, a not-for-profit membership organization of manufacturers, sellers or providers of technology-based assistive devices and/or services. The conference serves as a forum for the Assistive Technology community to participate in presentations and discussions about new technology, practical applications, and services. Segments of the Assistive Technology industry (Augmentative and Alternative Communication; Blindness; Computer Access; Curriculum Adaptations; Deaf and Hard of Hearing; Electronic Aids to Daily Living; Games and Recreation; Learning Disabilities/Study Aids/Literacy; Low Vision; and Mechanical Accessories and Mounting Devices) will be represented in various presentations, demonstrations and/or exhibits. In addition, a hands-on lab will provide an opportunity to experiment with and evaluate the latest assistive technology devices and software available. ATIA 2006 is for anyone in the Assistive Technology Community: Administrators AT Consultants Community Technology Center's Network (CTCNet) Consumers Government Personnel Occupational Therapists Parents Persons Interested in AT Physical Therapists Speech-Language Pathologists Teachers Technology Specialists. At the conference, you can learn about practical applications and uses of the current products, software and technology as they apply to: AAC and Language Development Advocacy and Policy Early Childhood Government Funding Independent Living K-12 Literacy Print Access Section 508, E&IT/Accessibility and Interoperability Workforce Development and more. [More Information on ATIA 2006 Conference]
    
    
11. Closing the Gap: Computer Technology in Special Education and Rehabilitation
    October 20, 2005 to October 22, 2005 in Minneapolis, Minnesota, United States
    Closing The Gap's Annual Conference has in international reputation as a leading source for information on innovative applications of computer technology for persons with disabilities. The 2005 Conference builds on a tradition of providing a comprehensive examination of the most current uses of technology by persons with disabilities and the professionals who work with them. [More Information on Closing the Gap: Computer Technology in Special Education and Rehabilitation]
    
    
12. The Worried Child - Norfolk, VA
    in Norfolk, Virginia, United States
    The purpose of this seminar is to provide participants with an understanding of how anxiety develops in children and adolescents, and acquire practical assessment and treatment strategies that can be applied immediately in their professional practice. Emphasis will be on psychotherapeutic approaches, with a brief look at the issues associated with herbal treatment. [More Information on The Worried Child - Norfolk, VA]
    
    
13. The Worried Child - Rockville
    March 17, 2005 in Rockville, Maryland, United States
    The purpose of this seminar is to provide participants with an understanding of how anxiety develops in children and adolescents, and acquire practical assessment and treatment strategies that acan be applied immediately in their professional practice. Emphasis will be on psychotherapeutic approaches, with a brief look at the issues associated with medication and herbal treatment. [More Information on The Worried Child - Rockville]
    
    
14. New York Resources for Children with Special Needs: Special Camp Fair
    January 29, 2005 in New York, New York, United States
    Resources for Children with Special Needs’ Special Camp Fair brings together representatives of day camps in New York City and sleepaway camps all over the Northeast that serve children with disabilities. This is your opportunity to talk to camp representatives about your needs and how the camps can serve those needs. Admission to the Fair is free and adult attendees (one per family) will get a free copy of Camps 2005. This unique directory provides detailed profiles of almost 300 special and mainstream summer programs for children and youth with special needs, including sleepaway camps in the Northeast and day camps and summertime activities in New York City. The Camp Fair is a unique opportunity to find just the right summer program for your child, so please join us. [More Information on New York Resources for Children with Special Needs: Special Camp Fair]
    
    
15. 2004 World Congress and Exposition on Disabilities
    October 7, 2004 to October 9, 2004 in Orlando, Florida, United States
    The World Congress and Exposition on Disabilities (WCD) is an annual conference and trade show bringing together people with disabilities, their families and caregivers with physicians, allied healthcare professionals, educators, therapists and all others within the disability community. Joining this collaboration are the associations, manufacturers and providers that serve this industry. The WCD provides a forum for sharing ideas, experiences and support for families and professionals involved in the care and development of those with disabilities and special healthcare needs. The WCD offers over 120 educational seminars, an Assistive Technology Learning Center, a Sports and Recreation Activity Center and an Employment Pavilion, as well as the latest products and services from over 200 exhibitors. [More Information on 2004 World Congress and Exposition on Disabilities]
    
    
16. 2004 Pacific Rim Conference on Disabilities
    March 29, 2004 to March 30, 2004 in Honolulu, Hawaii, United States
    The 2004 Pacific Rim Conference on Disabilities will be held on March 29-30, 2004 at the Sheraton Waikiki Hotel in Honolulu, HI. Since the first Pacific Rim (Pac Rim) Conference in 1985, the scope and size of this premier event has grown to include participants from the U.S. Mainland, Alaska, Pacific Islands Nations, Japan, Australia, the Philippines and numerous other countries. Persons with disabilities, family members, researchers, and service providers join policy-makers and nationally recognized speakers in the field of disabilities to participate in Pac Rim 2004 to learn from each other and to share resources for communities to fully accept and support persons with disabilities. Pac Rim 2004 strand topics include Lifelong Inclusion in Education and Community; Technology Across the Ages; Parent Partnerships and Family Supports; Employment and Adult Services; and Body, Mind and Spirit. [More Information on 2004 Pacific Rim Conference on Disabilities]
    
    
17. Conference on Dyslexia and Related Learning Disabilities
    March 5, 2004 to March 6, 2004 in New York, New York, United States
    The New York Branch of the International Dyslexia Association is hosting their 31st annual Conference on Dyslexia and Related Learning Disabilities on March 5-6, 2004 in midtown New York City. The conference showcases products and programs in conjunction with 100 sessions on the state of research and practice in the field of dyslexia and related learning disabilities. [More Information on Conference on Dyslexia and Related Learning Disabilities]
    
    
18. 2004 Michigan Early Interventionists/Parent Training Conference
    February 6, 2004 in Lansing, Michigan, United States
    The Early Hearing Detection and Intervention (EHDI) Program of the Michigan Dept. of Community Health is hosting their annual Michigan Early Interventionists/Parent Training Conference on Friday, February 6, 2004 in Lansing, Michigan. This conference will train and educate professionals and parents from around the state on the latest information and skills needed to maintain and improve services to newborns and children 0-3 years of age with hearing loss. [More Information on 2004 Michigan Early Interventionists/Parent Training Conference]
    
    
19. ATIA 2004 Conference and Exhibition
    January 14, 2004 to January 17, 2004 in Lake Buena Vista, Florida, United States
    The Assistive Technology Industry Association (ATIA) will hold its 2004 Conference and Exhibition on January 14-17, 2004. ATIA 2004 serves as a leading forum for the Assistive Technology community to participate in presentations and discussions about new technology, practical applications, and services. [More Information on ATIA 2004 Conference and Exhibition]
    
    

News                                                         Return to top of page

1. Tots 'n Tech Needs Your Help!
   Apr 18, 2006
   The Tots 'n Tech Research Institute (TnT) is an inter-university collaboration between Thomas Jefferson University in Philadelphia, PA and Arizona State University in Tempe, AZ. TnT conducts a national research program about use of assistive technology (AT) to enhance the development of infants and toddlers with disabilities. A major component of the TnT's mission is to produce new knowledge and information about AT use and practices and, specifically, about the ways in which AT may optimize children's development and learning. TnT is currently conducting two surveys to learn more about how Assistive Technology (AT) may have been helpful to (1) parents and (2) infants and toddlers.

   The first survey, entitled "Family Survey," seeks information from parents whose children are under the age of three years on what kinds of training and experience the parents have had with AT. The second survey, the "Early Intervention Provider Survey," seeks information from multidisciplinary providers who work in early intervention at least one day per week to learn more about how AT may have been helpful to infants and toddlers. If you qualify as either a parent or a provider, please take a few minutes to respond to the appropriate survey. [More Information on Tots 'n Tech Needs Your Help!]
   
   

2. Extreme Makeover Incorporates Universal Design
   Jan 05, 2005
   On each episode of ABC's "Extreme Makeover: Home Edition", a team of professional designers is given one week to transform an entire home - interior and exterior. In many episodes, the designers incorporate universal design concepts into their rebuild. In an October 2004 episode, the team went to work for the Vardon family in Detroit, Michigan. Judy and Larry Vardon, both of whom are deaf, have two sons, one of whom is blind and autistic. The "Extreme Makeover" team worked with HITEC Group International to incorportate innovative assistive technology solutions to facilitate communication between the family members and to make a safer environment for all of the Vardons. [More Information on Extreme Makeover Incorporates Universal Design]
   
   
3. Exceptional Parent Library
   May 29, 2001
   The Exceptional Parent Library extends a "SPECIAL OFFER" for "The Complete IEP Guide: How to Advocate for your Special Ed Child" by Attorney Lawrence M. Siegel and provide free shipping from now until May 31, 2001. This new Second Edition, revised January 2001, is a comprehensive up to date step by step guide through the entire IEP process that provides encouragement to the reader as it takes a complicated process and makes it easier to understand. This all-in-one guide will help you: understand special-education law; identify your child's needs; prepare for meetings; develop the IEP and resolve disputes. Included in this volume are instructions, suggestions, strategies, resources, forms, and much more. This Internet-only offer Item Code: NL001SEO2, costs only $24.95. [More Information on Exceptional Parent Library]
   
   
4. Dentistry, Managed Care, and Your Special Child
   Sep 21, 2000
   On September 27 at 1:30 p.m. (Central Time) the Maternal and Child Health Bureau will sponsor a webcast entitled "Dentistry, Managed Care, and Your Special Child." This month's webcast features: -Faye Eldar, M.Ed., Family Liaison, Quality Community Managed Care Project: Phase II, located at the Center for the Advancement of Distance Education (CADE), School of Public Health (SPH), University of Illinois at Chicago (UIC). -Fred Margolis, D.D.S., a pediatric dentist in private practice, and an Assistant Professor of Dentistry at the University of Illinois at Chicago College of Dentistry. -Scott Miller, D.D.S., a general dentist with a family practice, and President of the Chicago area of the Academy of General Dentistry. -Alyce Selman, the mother of three children, including one child with special healthcare needs. The KCMO Webcast Series is produced by the staff of the Quality Community Managed Care: Phase II (QCMC-II) project, which is funded by the Maternal Child Health Bureau (MCHB). This project supports the development of partnerships between the state children with special health care needs program, managed care organizations, and families. It also works to bridge gaps in the service system through the provision of information and training. [More Information on Dentistry, Managed Care, and Your Special Child]
   
   
5. Exceptional Parent Library announces the addition of online shopping at their website
   Jul 05, 2000
   EP Library, a division of Exceptional Parent magazine, is one of the largest sources of books, videos, CD's, and software for the disability community. This new feature makes it easier for parents, educators, and professionals around the world to obtain any of the products in the library by simply clicking a mouse. Eplibrary.com currently lists and details books, videos, CD's, and software in almost fifty specific as well as general categories. A search feature is provided on the site to help simplify things. Along with the addition of the online shopping feature, eplibrary.com provides reviews on many of the titles, providing even more in-depth information. [More Information on Exceptional Parent Library announces the addition of online shopping at their website]
   
   
6. National Institute on Deafness and Other Communication Disorders Adds Parents Section to Website
   Jun 05, 2000
   The Parents' section offers new fact sheets for parents on several important topics that affect young children. Each fact sheet includes a listing of organizations where parents may find additional information. Topics include the following:
   • Communication Options for Children Who Are Deaf or Hard-of-Hearing.
   • Speech and Language: Developmental Milestones.
   • Otitis Media: Facts for Parents.
   [More Information on National Institute on Deafness and Other Communication Disorders Adds Parents Section to Website]
   
   
7. How to Select a Health Plan for Your Family & Child with Special Healthcare Needs
   Feb 18, 2000
   The second in a series of webcasts sponsored by the Maternal and Child Health Bureau through a grant, Quality Community Managed Care-2, will be broadcast February 23, 2000 at 1:30 PM CST. The session, How to Select a Health Plan for Your Family & Child with Special Healthcare Needs, will feature: Faye Eldar, Moderator, University of Illinois at Chicago; Robin Speaks, Team Leader for Admitting & Business Associates and Patient Financial Services, Children's Memorial Medical Center, Chicago, Illinois; Kathy McCarthy, an Illinois parent of a seven-year old child with spinal muscular atrophy. Please register online for this broadcast at: http://www.uic.edu/sph/cade/kidsmco/. You will need a RealPlayer 5.0 or higher to listen to the broadcast. (You can download a free copy of the Player and test it prior to the webcast by going to the Technical Requirements page of the host website.) Can't listen to the live webcast? Checkout the webcast archives and listen to this session, as well as previous sessions, at your convenience. A full- text transcript of each session is also available in the archives. Quality Community Managed Care-2 is funded by a grant from the Maternal and Child Health Care Bureau. http://www.mchb.hrsa.gov [More Information on How to Select a Health Plan for Your Family & Child with Special Healthcare Needs]
   
   
8. Fatherhood: No Longer a Lost Cause
   Oct 08, 1999
   On Tuesday, October 5, the Washington Post Health Section covered two issues of interest to people with disabilities. One article is, "Fatherhood: No Longer a Lost Cause: New Techniques Allow Men to Become Parents Despite Spinal Cord Injuries." You must register with the Washington Post in order to access this article [More Information on Fatherhood: No Longer a Lost Cause]
   
   
9. Advocating for Disabled Parents
   Oct 08, 1999
   On Tuesday, October 5, the Washington Post Health Section covered two issues of interest to people with disabilities. On article is, "Advocating for Disabled Parents: Agency Leads Drive to Ensure That Handicaps Are Not Automatic Obstacles to Creating Families." In order to access this article you must register with the Washington Post. [More Information on Advocating for Disabled Parents]
   
   
10. MetDESK
    Jun 22, 1999
    MetLife Insurance has introduced MetDESK, a dedicated division to help families with special needs children to develop a financial plan that will provide for the long term needs of their children. MetDESK offers a dedicated staff of specialists and a MetDESK web page where visitors can learn more about financial issues for special needs children. For more information, contact: David Harmon Phone: 212/578-8532; e-mail: dmharmon@metlife.com. or Christina Tso Phone: 212/578-4946; e-mail: ctso@metlife.com. [More Information on MetDESK]
    
    

Classifieds                                                         Return to top of page

1. For Sale : Alvema Trax Max adaptive stroller ( Received Dec 12, 2011)
   This Adaptive Stroller was used twice. It is in excellent condition, and we have all of the support pads, as well as the canopy. Rated for up to 150 pounds. You can view a detailed description at this website. This stroller will take you from infant to adult easily. Fully adjustable. It has two drum brakes and a brake locking mechanism. [More Information on Alvema Trax Max adaptive stroller ]